menieresstrong

Over the years I've come to some realisations about things I'm no longer able to do due to having Meniere's disease. Before you read any further, please remind yourself that this disease is different with everyone, and what's not working for me might be working for someone else. This post is also not me complaining about things I've had to give up. I'm just presenting some facts here :) Rollercoasters. Ah, I used to love going to amusement parks and riding rollercoasters and other rides. I LOVE amusement parks. Now, unfortunately, my balance goes way off if I get on a ride, so I no longer have to spend crazy amounts of money on those wrist bands... Walk down the stairs without holding onto the banister. I still have good days when I can just run down the stairs with no problems, but most of the time I need to hold onto something. If it's dark, I definitely have to be careful on the stairs. Function well without proper sleep. I need my sleep, I reall...

I have been living with a hearing aid for about a month and a half now, so I thought I'd give you guys a little update on how everything is going. It's going pretty damn well! When I first got my hearing aid the ear piece was a very general one - one that could fit into anyone's ear. It worked fine, but it was itchy from time to time. At first I didn't notice too big of a difference with or without the hearing aid on, only some certain noises and stuff. It took a few weeks for my brain to adapt enough for me to be able to notice how my hearing drops when I take the hearing aid out. I also noticed how it helps with my tinnitus :) Almost a couple of weeks ago I got my own individual ear piece, and was introduced to whole new sounds! I didn't know there could be that big of a difference between the general ear piece and the individual one! I hear so much better now. The ear piece fits my ear perfectly (as it should, of course), and doesn't itch. Plus it...

Let me just say this: Meniere's disease sucks . It really does, but there's nothing I can do about the fact that I have it. I can't make it go away, although I can manage it. There's no known cause for it, so I can't tell you what to do so you won't get it. In some cases it's hereditary, and in some cases a person's just shit out of luck. That's the wording my co-worker once used. She asked me, "So does it run in your family or were you just shit out of luck?" I was just shit out of luck. But... if I can't make it go away, why wouldn't I just try to live with it with the best of my ability? Meniere's disease has made my life better in many ways. I could live without the dizziness and especially the vertigo (which I don't get a lot anymore, thank goodness), and I hate it when I get pressure in my ear. But when it comes to my hearing loss, I find it the least of my worries. I got used to the idea of a hearing aid before I go...