menieresstrong

Meniere's disease is different with everyone, that much we all know. However, there are a variety of symptoms that everyone with MD experiences at least sometimes. Below I have listed common symptoms that occur before, during and after attacks / between attacks, and I have underlined everything that I am experiencing during those stages on a regular basis. All of the information I have gathered in this post, can be found from Vestibular Disorders Association 's (VEDA) website, which is an excellent source of information. This post is not sponsored. BEFORE AN ATTACK: balance disturbance dizziness, lightheadedness headache, increased ear pressure hearing loss or tinnitus increase sound sensitivity vague feeling of uneasiness DURING AN ATTACK: spontaneous, violent vertigo fluctuating hearing loss ear fullness (aural fullness) and/or tinnitus anxiety , fear diarrhea blurry vision or eye jerking nausea and vomiting cold sweat , palpitations or rapid pulse trem...

I got sick five years ago and was fortunate enough to have a mother who's an interpreter and knows a thing or do about everything ear-related. I also had a good doctor and did my own research about Meniere's disease online. However, back then it never occurred to me to look for support in social media. I never read blogs about Meniere's disease or searched for any groups or networks. I was pretty much alone with my disease, but I usually prefer it that way. I'm weird and isolated like that. I know that doesn't work for most people. Here are some things you can do if you've recently been diagnosed with Meniere's disease, or if it's something that you might have and you just haven't been diagnosed yet. Do your research. Meniere's disease symptoms also fit some other conditions, so make sure you know what is happening in your body. This way you can provide your doctor valuable information that can help him help you. If/when you get your di...

Over the years I've come to some realisations about things I'm no longer able to do due to having Meniere's disease. Before you read any further, please remind yourself that this disease is different with everyone, and what's not working for me might be working for someone else. This post is also not me complaining about things I've had to give up. I'm just presenting some facts here :) Rollercoasters. Ah, I used to love going to amusement parks and riding rollercoasters and other rides. I LOVE amusement parks. Now, unfortunately, my balance goes way off if I get on a ride, so I no longer have to spend crazy amounts of money on those wrist bands... Walk down the stairs without holding onto the banister. I still have good days when I can just run down the stairs with no problems, but most of the time I need to hold onto something. If it's dark, I definitely have to be careful on the stairs. Function well without proper sleep. I need my sleep, I reall...

I had never heard of Meniere's disease before I found out I have it, so it wasn't really realistic for me to expect others to know what was going on with me. When I started telling people I have MD, the most common replies were: "Okayyy..?" "What's that?" "Neverheard" "A what disease?" "Ooh, what a cool name!" Yep. My chronic illness does have a cool name, I do agree. It's sad how Meniere's is so little known. My friends were interested in learning about it, but since my disease is pretty well under control and it doesn't have a direct affect on anyone besides myself, they tend to forget about it. They'll ask things like: "What was the name of that condition you have, again?" "You had some ear thing, right?" "Are your ears all better now?" I don't take it personally if someone I know forgets the name of my disease or if someone remembers the name but doesn...

My hearing has deteriorated so slowly that I never even realized it was happening. I knew it was happening, but as far as I'm concerned I hear just as well as I did five years ago. But... I really don't. I mean, I really  don't. Here's a picture of my very first audiogram back in 2012 when I'd never heard of Meniere's disease compared to an audiogram from July of 2016: The truth is, even after the latest audiogram I didn't feel as hard of hearing as I am on paper. My right ear being healthy naturally has a lot to do with why I feel that way, but still. I never noticed how bad my left ear had gotten. Every now and then I would pay attention to it and take advantage of certain aspects of my hearing loss, but I never thought about it any further. You know what I mean? I'm getting a hearing aid for my left ear sometime this spring, which ought to make things a bit easier for me, since I don't do so well in crowds, classrooms, and other noisy e...

Hi, everyone, and welcome to Menieresstrong! If you clicked here from my personal blog , then you probably already know what this new blog is about. If you just randomly happened to stumble upon here, let me bring you up to date! I have had Menieres's disease since 2012. I follow many Meniere's associated sites and groups online and although it makes me happy whenever I find a new site (I feel there really aren't that many!), most of the time I end up disappointed a little because of all the negativity. The thing about Meniere's is that it's never the same between two individuals. I'm currently doing really well with my own condition, but I realize there are a lot of people out there who suffer from this disease and its symptoms on a daily basis and never get a chance to breathe in between. However, I think people should hear the positive side of life with Meniere's as well. I would never judge anyone by what they're telling about their condition, a...