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ABOUT

Hello, and welcome to Menieresstrong!

This is a blog that focuses on the positive side of things in my life that has permanently changed due to Meniere's Disease. My aim is to encourage all of you with Meniere's Disease and other vestibular disorders, and spread positivity and good vibes. 

Meniere's Disease did not ruin my life. In a weird way it enriched my life.


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Popular posts from this blog

What I Want You to Know About Me and My Life with Meniere's Disease

If you know someone with Meniere's disease, you should read this. If you know me, and are a part of my life, then you should definitely read this.

1. It's completely fine to ask me about anything related to my condition! I would rather have you ask than make assumptions. MD is not a sensitive subject to me, and I'm happy to fill in the gaps!

2. My condition is permanent. My hearing loss is permanent. Please don't ask me a year from now if my ear is all better - it won't be. There's no cure for MD, and this is something I'm stuck with until there is one.

3. If/when I say I can't hear you, I mean it. Please accommodate to that, and speak up, or write or type what you need to say to me. Or, if you know Finnish or American sign language, you can sign to me ;)

4. When I have vertigo, please know that it's quite debilitating. If I ask you to drive, it literally means my world is spinning out of control and you do not want me operating heavy machinery. My…

Meniere's Disease Symptoms

Meniere's disease is different with everyone, that much we all know. However, there are a variety of symptoms that everyone with MD experiences at least sometimes. Below I have listed common symptoms that occur before, during and after attacks / between attacks, and I have underlined everything that I am experiencing during those stages on a regular basis. All of the information I have gathered in this post, can be found from Vestibular Disorders Association's (VEDA) website, which is an excellent source of information. This post is not sponsored.

BEFORE AN ATTACK:
balance disturbancedizziness, lightheadednessheadache, increased ear pressurehearing loss or tinnitus increasesound sensitivityvague feeling of uneasiness DURING AN ATTACK: spontaneous, violent vertigofluctuating hearing lossear fullness (aural fullness) and/or tinnitusanxiety, feardiarrheablurry vision or eye jerkingnausea and vomitingcold sweat, palpitations or rapid pulsetrembling AFTER AN ATTACK / BETWEEN ATTACKS: …

What I Can't Do With Meniere's Disease

Over the years I've come to some realisations about things I'm no longer able to do due to having Meniere's disease. Before you read any further, please remind yourself that this disease is different with everyone, and what's not working for me might be working for someone else. This post is also not me complaining about things I've had to give up. I'm just presenting some facts here :)


Rollercoasters. Ah, I used to love going to amusement parks and riding rollercoasters and other rides. I LOVE amusement parks. Now, unfortunately, my balance goes way off if I get on a ride, so I no longer have to spend crazy amounts of money on those wrist bands...

Walk down the stairs without holding onto the banister. I still have good days when I can just run down the stairs with no problems, but most of the time I need to hold onto something. If it's dark, I definitely have to be careful on the stairs.

Function well without proper sleep. I need my sleep, I really do, or I …