Skip to main content

What is Menieresstrong?


Hi, everyone, and welcome to Menieresstrong! If you clicked here from my personal blog, then you probably already know what this new blog is about. If you just randomly happened to stumble upon here, let me bring you up to date!

I have had Menieres's disease since 2012. I follow many Meniere's associated sites and groups online and although it makes me happy whenever I find a new site (I feel there really aren't that many!), most of the time I end up disappointed a little because of all the negativity. The thing about Meniere's is that it's never the same between two individuals. I'm currently doing really well with my own condition, but I realize there are a lot of people out there who suffer from this disease and its symptoms on a daily basis and never get a chance to breathe in between. However, I think people should hear the positive side of life with Meniere's as well. I would never judge anyone by what they're telling about their condition, and I would never second guess anyone when they say how hard they have it. What I don't like is groups posting negative stuff about Meniere's disease and making it look like it reflects the thoughts and mindsets of every single person who has this disease. Not one group does this on a regular basis, and I don't think it's what they mean to do at all, it's just how I sometimes see it, and that is what made me create Menieresstrong.

I have Meniere's disease and I'm completely fine with it, even though I sometimes wish I could hear better and that I wouldn't have a constant ring in my ears. I've learned to live with my disease and everything that has come with it, and I can honestly say it's all a part of me now, and not necessarily in a bad way.

In this blog I want to talk about Meniere's disease, I want to share my own story and journey with it, and I want to emphasize how Meniere's does not need to ruin your life, and it does not have to be the dark center of your life. If you're someone with Meniere's disease, I hope reading this blog will make you feel better. I'm not on a mission to diminish what you are going through, because we all experience this disease differently, but I do hope that I'm able to improve your day even a little bit. I would consider that a win already.

I will be updating as regularly as I can - hopefully at least 2-3 times a week. Please subscribe and don't hesitate to leave a comment. You can also follow Menieresstrong on Instagram and Facebook! :)

Hope you all have a vertigo-free weekend. Talk to you later!


Labels:

Comments

Post a Comment

Popular posts from this blog

How Others React To My Meniere's Disease

I had never heard of Meniere's disease before I found out I have it, so it wasn't really realistic for me to expect others to know what was going on with me. When I started telling people I have MD, the most common replies were: "Okayyy..?" "What's that?" "Neverheard" "A what disease?" "Ooh, what a cool name!" Yep. My chronic illness does have a cool name, I do agree. It's sad how Meniere's is so little known. My friends were interested in learning about it, but since my disease is pretty well under control and it doesn't have a direct affect on anyone besides myself, they tend to forget about it. They'll ask things like: "What was the name of that condition you have, again?" "You had some ear thing, right?" "Are your ears all better now?" I don't take it personally if someone I know forgets the name of my disease or if someone remembers the name but doesn&
2 comments
Read more

Who Am I?

Launching a new blog is always exciting. I love blogging, and have been doing it since late 2010. If you want to check out my lifestyle/travel blog, click here . I have shared thoughts about my Meniere's disease over there, too, but decided creating a new blog dedicated to the subject made more sense, because I have a lot of thoughts and things to say. I'm excited about this blog, and looking forward to really getting it started. So, naturally, I want you guys to get to know me. My name is Iira, and I'm a 27-year-old business student from Finland. I'm on my last year of studies, and to be honest, I have no idea what I will do after graduation. I'm pretty good at winging it... eyeliner, and life. I currently work as a personal assistant and hope to move abroad at some point. I love traveling and writing. Simple things make me happy. Besides my business studies I've taken on Finnish sign language classes, and I love it! I'm also independently studying Am
2 comments
Read more

What I Want You to Know About Me and My Life with Meniere's Disease

If you know someone with Meniere's disease, you should read this. If you know me, and are a part of my life, then you should definitely read this. 1. It's completely fine to ask me about anything related to my condition! I would rather have you ask than make assumptions. MD is not a sensitive subject to me, and I'm happy to fill in the gaps! 2. My condition is permanent. My hearing loss is permanent. Please don't ask me a year from now if my ear is all better - it won't be. There's no cure for MD, and this is something I'm stuck with until there is one. 3. If/when I say I can't hear you, I mean it. Please accommodate to that, and speak up, or write or type what you need to say to me. Or, if you know Finnish or American sign language, you can sign to me ;) 4. When I have vertigo, please know that it's quite debilitating. If I ask you to drive, it literally means my world is spinning out of control and you do not want me operating heavy mach
Post a Comment
Read more