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What is Menieresstrong?

Hi, everyone, and welcome to Menieresstrong! If you clicked here from my personal blog, then you probably already know what this new blog is about. If you just randomly happened to stumble upon here, let me bring you up to date!

I have had Menieres's disease since 2012. I follow many Meniere's associated sites and groups online and although it makes me happy whenever I find a new site (I feel there really aren't that many!), most of the time I end up disappointed a little because of all the negativity. The thing about Meniere's is that it's never the same between two individuals. I'm currently doing really well with my own condition, but I realize there are a lot of people out there who suffer from this disease and its symptoms on a daily basis and never get a chance to breathe in between. However, I think people should hear the positive side of life with Meniere's as well. I would never judge anyone by what they're telling about their condition, and I would never second guess anyone when they say how hard they have it. What I don't like is groups posting negative stuff about Meniere's disease and making it look like it reflects the thoughts and mindsets of every single person who has this disease. Not one group does this on a regular basis, and I don't think it's what they mean to do at all, it's just how I sometimes see it, and that is what made me create Menieresstrong.

I have Meniere's disease and I'm completely fine with it, even though I sometimes wish I could hear better and that I wouldn't have a constant ring in my ears. I've learned to live with my disease and everything that has come with it, and I can honestly say it's all a part of me now, and not necessarily in a bad way.

In this blog I want to talk about Meniere's disease, I want to share my own story and journey with it, and I want to emphasize how Meniere's does not need to ruin your life, and it does not have to be the dark center of your life. If you're someone with Meniere's disease, I hope reading this blog will make you feel better. I'm not on a mission to diminish what you are going through, because we all experience this disease differently, but I do hope that I'm able to improve your day even a little bit. I would consider that a win already.

I will be updating as regularly as I can - hopefully at least 2-3 times a week. Please subscribe and don't hesitate to leave a comment. You can also follow Menieresstrong on Instagram and Facebook! :)

Hope you all have a vertigo-free weekend. Talk to you later!


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What I Want You to Know About Me and My Life with Meniere's Disease

If you know someone with Meniere's disease, you should read this. If you know me, and are a part of my life, then you should definitely read this.

1. It's completely fine to ask me about anything related to my condition! I would rather have you ask than make assumptions. MD is not a sensitive subject to me, and I'm happy to fill in the gaps!

2. My condition is permanent. My hearing loss is permanent. Please don't ask me a year from now if my ear is all better - it won't be. There's no cure for MD, and this is something I'm stuck with until there is one.

3. If/when I say I can't hear you, I mean it. Please accommodate to that, and speak up, or write or type what you need to say to me. Or, if you know Finnish or American sign language, you can sign to me ;)

4. When I have vertigo, please know that it's quite debilitating. If I ask you to drive, it literally means my world is spinning out of control and you do not want me operating heavy machinery. My…

Meniere's Disease Symptoms

Meniere's disease is different with everyone, that much we all know. However, there are a variety of symptoms that everyone with MD experiences at least sometimes. Below I have listed common symptoms that occur before, during and after attacks / between attacks, and I have underlined everything that I am experiencing during those stages on a regular basis. All of the information I have gathered in this post, can be found from Vestibular Disorders Association's (VEDA) website, which is an excellent source of information. This post is not sponsored.

balance disturbancedizziness, lightheadednessheadache, increased ear pressurehearing loss or tinnitus increasesound sensitivityvague feeling of uneasiness DURING AN ATTACK: spontaneous, violent vertigofluctuating hearing lossear fullness (aural fullness) and/or tinnitusanxiety, feardiarrheablurry vision or eye jerkingnausea and vomitingcold sweat, palpitations or rapid pulsetrembling AFTER AN ATTACK / BETWEEN ATTACKS: …

What I Can't Do With Meniere's Disease

Over the years I've come to some realisations about things I'm no longer able to do due to having Meniere's disease. Before you read any further, please remind yourself that this disease is different with everyone, and what's not working for me might be working for someone else. This post is also not me complaining about things I've had to give up. I'm just presenting some facts here :)

Rollercoasters. Ah, I used to love going to amusement parks and riding rollercoasters and other rides. I LOVE amusement parks. Now, unfortunately, my balance goes way off if I get on a ride, so I no longer have to spend crazy amounts of money on those wrist bands...

Walk down the stairs without holding onto the banister. I still have good days when I can just run down the stairs with no problems, but most of the time I need to hold onto something. If it's dark, I definitely have to be careful on the stairs.

Function well without proper sleep. I need my sleep, I really do, or I …